YANA - YOU ARE NOT ALONE NOW

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Rich Brown and Pat live in Illinois, USA. He was 48 when he was diagnosed on April 18, 2008. His initial PSA was 3.5 ng/ml, his Gleason Score was 6 (3 + 3) and he was staged T1c. His choice of treatment was Robotic Prostatectomy. Here is his story.

My story begins at my annual Physical Exam in February of 2008. My GP had been checking my PSA and doing a DRE since I turned 46. My Dad was diagnosed with PC when he was 65, had radiation therapy and is doing fine at 79. I received a call from my Doctor's office a few days later saying he wanted to put me on an antibiotic for 10 days and recheck my PSA to see if I had an infection. After about 8 days of the Antibiotic I ended up in the hospital overnight with an enlarged Prostate and Colitis. I was scheduled with a Urologist that my GP referred me to. He checked me over and re-tested my PSA. It came back at 3.5 and he scheduled me for a Biopsy.

I had a biopsy on April 11th, and was called back to the office on April 18th, 08. I now know what people mean when they say they felt that they were hit by a 2 x 4 in the gut. I couldn't believe that my Doctor was telling me I had Prostate Cancer. I was only 48 years old. PC to me was the old guys' cancer. Even my Dad was 65 . He did tell me the good news was that it was caught very early and was very treatable. I only had involvement in 2 out of 12 cores, with a Gleason of 6 and staged a T1C.

I left the office and called my wife as soon as I got in the car. She was shocked as well. We set up an appointment to go back in and discuss the options with the Doctor. We met with him later that day. He explained the options with us, but recommended surgery to be the best option at my age. We scheduled surgery for later in May before we left the office. A couple of weeks before the surgery I went back in to get some more answers, and I ended up cancelling the surgery. I decided that I wanted to investigate the options, plus I wasn't comfortable with the experience of my Doctor for this surgery.

After doing a lot of research, talking to a lot of people, and praying a lot, I found a very good Doctor in Indianapolis. I still felt that for long term survival at my age, surgery was the best option. My wife and I went to see Dr. John Scott in Carmel Indiana. We were very impressed with him. He actually sat and talked to us and answered our questions for an hour. That is pretty rare these days. I scheduled the surgery for Sept. 8th, and began to try to get in good shape for the surgery.

I am 2 weeks past surgery as of this writing. The robotic surgery went pretty well, although it was harder on me than I expected. The good news is that all my path reports came back really good. My margins were clear with no outside involvement. My Gleason score stayed at (3 + 3) 6.

My recovery is coming along pretty well. I have already had my first follow-up, and an rid of the Catheter. I am getting out and walking and increasing my activity a little more each day. I do have a little stress incontinence, but not bad for only having the Catheter out for 5 days.

I haven't started to think much about the ED. My Urologist sent me home with a pump and recommended that I start using it soon, to keep blood flowing. I am looking forward to life returning to normal. That is the main reason that I chose a Doctor with a lot of experience. He has done over 1,400 robotic surgeries.

I will update after my next follow-up appointment.

Later: I returned to Dr. Scott's office on Oct. 9th for a follow-up. He was happy with my progress and released me to go back to work the following Monday. They took blood for my PSA. I received a call from his nurse the following Tuesday telling me that my PSA came back at .01 undectectable. Wow, talk about relief. Praise God!

Other things are coming along OK. I have only a little stress incontinence. I wear a light pad during the day and nothing at night. Some days it stays completely dry, and some days just a few leaks.

As far as the ED, Dr. Scott sent me home with a pump, and I am beginning to see some progress. He also wrote me a prescription for Cialis to take a half of one twice a week. I haven't started that yet. I am waiting for my bladder to settle down a little first.

I am back to work, happy to be Cancer free, and hopeful that life will return to normal soon.

Rich's e-mail address is: richnpatb@comcast.net

 

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