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RESOURCES
First
and foremost we aim to provide basic information - and links to more detailed
sites - for people who have recently had the news of a prostate cancer diagnosis.
The links to the relevant pages are shown below. If you hit the "Don't Panic"
button an arrival, and followed instructions, you will have been to these pages
already.
DON'T
PANIC : GOOD
NEWS! : DIAGNOSIS
: SURVIVING : TREATMENT
CHOICES :
The
secondary focus is to show that you are not alone. Thousands of people have been
down the road ahead of you.These are the relevant links to access the parts of
the site that put you in touch with those who have been before you:
MENTOR
EXPERIENCES: TREATMENT CHARTS:
TROOP C :DISCUSSION
FORUM : ABOUT US :
DONATIONS : JOIN US.
Listed
below some of the resources and other sites on the web which you may find helpful.
This is a small selection of the many sites available, but they are ones which
we think are particularly helpful. If there are any others you can recommend or
if you want more specific information email Terry
Although there is good information on the sites linked below, you may find them
confusing and you might prefer to "talk" to people dealing with the
same issues. There are many places on the Internet where you can do this apart
from the Forum on this
site. Here are some of the Message Boards and Lists
focussing on prostate cancer which can provide both information and support. One
of particular interest to the wives and female partners of diagnosed men is A
Prostate Cancer Forum for Ladies Only a group dedicated to educating women
about Prostate Cancer; its treatments and side effects. If you have not used Lists
before you might find it worthwhile to read the FAQ
- Frequently asked Questions.
A
Strange Place: This is a simple Information Guide to Prostate Cancer. It was
developed as a booklet for men in South Africa with no access to the Internet,
but has a general application for men and their partners in other countries. There
is a printable pdf version available on this link.
Donna Pogliano, a prostate cancer activist has some Advice
to the Newly Diagnosed which is well worth reading and printing to keep. Donna
felt some years ago that there was not enough basic information available about
prostate cancer and wrote A Primer on Prostate
Cancer . This grew into a book which she co-authored with Dr Strum and which
is a wonderful source of very detailed information. It is not an 'easy read' to
glance through while lounging by the pool, but it allows laypeople to get a good
understanding of complex medical issues. The full title of the book is A Primer
on Prostate Cancer. The Empowered Patients Guide. The ISBN number is 0-9658777-6-0
and it has been available at Amazon and Barnes & Noble as well as at the Life
Extension Foundation site, whose support saw the book published.
If
you like to obtain information by viewing Video files rather than by reading,
then go along to Prostate Videos where there
is some excellent information.
An
site that is excellent and provides what is probably the wildest range of current
technical information as well as links to many relevant sites is The
Palpable Prostate. A very useful aspect of the site is the guide to free downloadable
material. If
the Patients Helping Patients
site - see link below - is
the Encyclopaedia Britannica of Prostate Cancer on the Internet, then The Palpable
Prostate is the Wikipedia.
Malecare
originally operated only in New York city, although they now have got groups in
California, New Jersey and Texas and Italy and aim to add more groups as time
goes by. Their workshops, lectures, treatment and support groups provide cancer
education to men diagnosed with prostate cancer, testicular cancer and male breast
cancer. Their website has over two hundred patient and doctor written articles
and has articles in French, Italian, Spanish and Hebrew. They also have a section
for gay men.
John
Chandler says that he maintains what he regards as the best list of supposedly
good RP surgeons in the U.S. and Europe. He also maintain lists of U.S. specialists
in imaging, radiological oncology, and medical oncology and will e-mail these
lists to anyone requesting them. (Of course no guarantee is made concerning the
performance of any given physician.) Chuck
Maack also maintains a list of the Best Physicians in the (US) Nation. Although
there is much disagreement about what the best treatment might be, there no doubt
about the fact that the best results come from the best operators, so it is worth
contacting John and Chuck.
Harry
Pinchot, a prostate cancer activist had an important message in this speech
he delivered at a conference some years back. Simply put it is that Prostate Cancer
is a disease which afflicts not just the man with the prostate but also his partner.
He makes some telling points in this speech. Every man should take his words to
heart. Harry passed on after fighting the good fight in Janaury 2008.
The
Prostate Cancer Research Institute
is a non-profit organization that claims to have done more tangible important
things to help men with prostate cancer than any other organization. The site
certainly contains excellent technical information for those who want to try and
make some sense of this disease.
If
you haven't been diagnosed, there are two papers that you should read. One is
What Every Man Should Know (Click here for US Version:
Click here for British Version) and the other is What
Every Doctor Who Treats Male Patients Should Know(Click here for
US Version: Click here for British Version).
Even if you have been diagnosed, you might find it useful to read it through these
papers.
prostate-help
This
site is the Gateway link to the Encyclopaedia Britannica of the Internet as far
as Prostate Cancer is concerned and the link will take you to the page that shows,
not only where to find information, but other services offered. It is run by Don
Cooley, a well known figure in the prostate cancer world. There are literally
hundreds of pages of information, and although some of it was written some years
back, most is still relevant. This site can be a little intimidating to the newly
diagnosed, but it is well worth perservering and mining the mountain of knowledge.
Phoenix 5 Robert Young was diagnosed with very advanced
prostate cancer at a fairly young age. Regrettably he lost his fight against the
disease, but he left as his legacy a wonderful site. Many of the sections deal
with the personal issues faced by all of us.
Aubrey
Pilgrim, a prostate cancer survivor of many years' standing has written a book
A Revolutionary Approach
To Prostate Cancer which has been made available free of charge. Well worth
reading, it covers all the key issues.
The
home page of
National Cancer Institute gives all the latest information about prostate
cancer and a host of other information.
For
those interested in issues about diet and the 'right' food to eat, the relevant
chapter of Aubrey Pilgrim's book, Diet
and Exercise provides an excellent summary.
A
site that allows you to access their very informative Newsletter is the Prostate
Cancer Reasearch Institute which also has a wealth of information The Prostate
Cancer Foundation of Australia has useful information for men living in Australia.
A
site which emphasises an integrative medical approach is the Prostate
Awareness Foundation . They have regular meetings in San Francisco and have
organised fundraising hikes and climbs to places such as Mt Kilimanjaro.
Medical
Info on Line summarises
and reviews some key prostate cancer websites - including Yana.
Men's
Health is a general
health site with some interesting links - including Yana!
The
e-Medical Journal of Australia is a comprehensive store
of Medical Information about a variety of different treatments, both natural and
orthodox. Enter what you are looking for in the "Search This Site" box
and you will be taken into a whole world of information on a wide variety of topics
and treatment.
The
Prostate Cancer Charity has some good basic information for those in the United
Kingdom.
Some
Lists focus on specific issues or treatment and some are general Lists. The latter
tend to have quite high volume traffic - at their peak maybe 20 or 30 messages
a day. Many of these will not be of particular interest and because of this many
people prefer the quieter Lists with less traffic - and, of course, less information.
One
of the largest Lists is the Prostate Problems Mailing List (PPML). This is described
as an unmoderated forum which discusses problems and treatments related to men's
prostate gland. Discussion includes symptoms, diagnosis, treatment alternatives,
complications and personal impact. The intent is to help patients and their loved
ones understand their illness and make informed treatment decisions; to encourage
self-study of the effects and treatment of prostate diseases; and to support research
into the cause and cure of prostate problems as well as encourage effective health
care. To subscribe to the PPML: Access this URL
and follow the instructions
PCNG's
100 Links is a very full List of resources with which you can home in on the
area where you need more information.
The
Search Engine below may help you to find material on the site. It does not search
the Web.
If
you find any links that do not work as you go through the site it would help us
enormously if you could report these to Terry.
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